What is ACcORD?
The Australian Community Of practice in Research in Dementia (ACcORD) conducts research that aims to improve the wellbeing and health outcomes of people with dementia and people who support and care for them. This research is being conducted by leading researchers health care providers, including GPs, geriatricians and aged care nurses, and consumers. This research is funded by one of six Dementia Research Team Grants from the National Health and Medical Research Council.
Why are we developing a ‘Consumer Community of Practice’?
A Community of Practice is a group of people with a common goal to improve a certain area. This is done through the sharing of ideas and experiences. The input of people with dementia and their caregivers is vital to our research. We are developing a Consumer Community of Practice to gain a better understanding of the needs of people living with dementia and people who support and care for them.
By joining our Consumer Community of Practice, you will be contributing to cutting edge dementia research. You will have an opportunity to have your say about dementia care and associated issues. You can help us to better understand what matters to people living with dementia and their families, friends and caregivers, so that our studies are the best they can be, and lead to improved outcomes.
Who can be a member?
We are seeking people with dementia and people who support and care for them. You do not need to know much about dementia to contribute.
What will I be asked to do?
From time to time, people who are a part of our Community of Practice will be invited to give their views about dementia treatment, services or care. They may also be invited to participate in and/or give feedback on new research studies. Upon joining we will ask what type of activities you might be interested in (e.g. participate in a telephone interview, review a survey).
How often will I be contacted?
You can contribute as much or as little as you would like. Upon joining we will ask how often you would like us to contact you (e.g. once a month, twice a year). If your circumstances change you can update this by contacting us (details below).
Will there be any costs associated with joining?
There are no financial costs involved in being in the Community of Practice. You may be contacted by the ACcORD group from time to time, however you are under no obligation to take part in any of the studies or activities offered. Joining will in no way change the treatment or care you or your family member or friend is receiving.
I do not have access to a computer or I prefer paper copies can you contact me over the phone or by mail?
Yes, we can connect with you however you would like. We can also post hard copies of surveys and any other materials you may need. When you are signing up you can let us know what works best for you – phone, mail or email.
What if my circumstances change?
We completely understand that your circumstances may change. You are under no obligation to continue contributing to the Community of Practice. You can change your mind and withdraw at any time. Contact details are below if you would like to withdraw.