Study 3.2: Capacity, substitute and supported decision making for people with dementia: Community perceptions

Overview

This study aims to explore perceptions of community members regarding:

1) Signs that an older person may lack decision making capacity;

2) Capacity assessment processes across medical, financial and personal domains, including: a) Who can be approached to obtain a capacity assessment; b) What can be done when the person refuses a capacity assessment, and c) What should be included as part of the capacity assessment;

3) Approaches to substitute and supported decision making for older people for medical, financial and personal decisions.

Progress

Survey is in development. Ethics application to be submitted once face-to-face data collection is deemed appropriate by the relevant ethics committee.

Next Steps

Submit ethics application, pilot test survey.

Co-leaders: A/Prof Nola Ries, Dr Elise Mansfield

Working Group Members: Dr Jamie Bryant, A/Prof Roger Clarnette, Nola Ries, Dr Amy Waller and Danijela Hlis (consumer).