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Overview

Future planning, including medical, financial, and for research participation, is important for persons with dementia given the impact of the disease on capacity for decision making. This work explored issues of cognitive impairment screening, advance care directives and substitute decision making, and ethical and legal aspects of research involving older people with cognitive impairment. Data was collected via a series of cross-sectional surveys with clinicians, community-dwelling older adults, carers of persons living with dementia, and dementia researchers.

Progress

Data collection, analysis, and reporting is completed.

Publications & Presentations
  1. Bryant J, Hobden B, Waller A, et al. Participation in future planning by community-dwelling older Australians receiving aged care services: Findings from a cross-sectional survey. Australasian Journal on Ageing 2021;40(4):373-80. doi: https://doi.org/10.1111/ajag.12927
  2. Bryant J, Mansfield E, Cameron E, et al. Experiences and preferences for advance care planning following a diagnosis of dementia: Findings from a cross-sectional survey of carers. PLOS ONE 2023;18(6):e0286261. doi: 10.1371/journal.pone.0286261
  3. Bryant J, Turon H, Waller A, et al. Effectiveness of interventions to increase participation in advance care planning for people with a diagnosis of dementia: A systematic review. Palliative Medicine 2019;33(3):262-73. doi: 10.1177/0269216318801750
  4. Bryant J, Waller A, Bowman A, et al. Junior Medical Officers’ knowledge of advance care directives and substitute decision making for people without decision making capacity: a cross sectional survey. BMC Medical Ethics 2022;23(1):74. doi: 10.1186/s12910-022-00813-9
  5. Ries N, Johnston B. Dementia training for lawyers: results from a pilot evaluation study and implications for building dementia capability in the legal profession. Psychiatry, Psychology and Law:1-22. doi: 10.1080/13218719.2023.2280529
  6. Ries N, Mansfield E. Advance Research Directives: Dementia Researchers’ Views on a Prototype Directive and Implementation Strategies. Ethics & Human Research 2021;43(3):10-25. doi: https://doi.org/10.1002/eahr.500091
  7. Ries N, Mansfield E, Sanson-Fisher R. Planning Ahead for Dementia Research Participation: Insights from a Survey of Older Australians and Implications for Ethics, Law and Practice. Journal of Bioethical Inquiry 2019;16(3):415-29. doi: 10.1007/s11673-019-09929-x
  8. Ries NM, Mansfield E, Sanson-Fisher R. Advance Research Directives: Legal and Ethical Issues and Insights from a National Survey of Dementia Researchers in Australia. Medical Law Review 2020;28(2):375-400. doi: 10.1093/medlaw/fwaa003
  9. Ries NM, Mansfield E, Sanson-Fisher R. Ethical and legal aspects of research involving older people with cognitive impairment: A survey of dementia researchers in Australia. International Journal of Law and Psychiatry 2020;68:101534. doi: https://doi.org/10.1016/j.ijlp.2019.101534
  10. Rhee J, Carey M, Zucca A, et al. Exploring patients’ advance care planning needs during the annual 75+ health assessment: survey of Australian GPs’ views and current practice. Australian Journal of Primary Health 2023;29(6):637-42. doi: https://doi.org/10.1071/PY22227
  11. Rice R, Bryant J, Fisher RS. Documentation of cognitive impairment screening amongst older hospitalised Australians: a prospective clinical record audit. BMC Geriatrics 2023;23(1):672. doi: 10.1186/s12877-023-04394-z
  12. Hobden B, Bryant J, Freund M, et al. Screening for Cognitive Impairment among Community-Dwelling Older Adults: A Comparison of 2 Screening Instruments. Journal of Primary Care & Community Health 2021;12. doi: 10.1177/21501327211029231
  13. Waller A, Bryant J, Bowman A, et al. Junior medical doctors’ decision making when using advance care directives to guide treatment for people with dementia: a cross-sectional vignette study. BMC Medical Ethics 2022;23(1):73. doi: 10.1186/s12910-022-00811-x
  14. Bryant, J., Turon, H., Waller, A., Freund, M., & Mansfield, E. Advanced Personal Planning Following a Diagnosis of dementia, Poster Presentation, Alzheimer’s Australia Biennial National Dementia Conference, 18-19th October 2017, Melbourne.
  15. J Bryant, E Mansfield, E Cameron, & R Sanson-Fisher. Preferences for timing of discussions about Advance Care Planning: Findings from a survey with carers, Poster Presentation, NNIDR Australian Dementia Forum, 13-14th June 2019, Hobart.
  16. J Bryant, E Mansfield, E Cameron, & R Sanson-Fisher. Participation in future planning by persons with dementia: Findings from a cross-sectional survey of carers, Poster Presentation, NNIDR Australian Dementia Forum, 13-14th June 2019, Hobart.
  17. A Bowman, J Bryant, A Waller, R Sanson-Fisher, R Pickles, C Hullick, B White, E Price, & L Willmott. Junior Medical Officers’ knowledge of implementation of advance care directives for people with dementia, Poster Presentation, NNIDR Australian Dementia Forum, 13-14th June 2019, Hobart.
 Co-leaders: Prof Kichu Nair, Dr Elise Mansfield.
Working Group Members: Dr Jamie Bryant, A/Prof Roger Clarnette, Nola Ries, and Danijela Hlis (consumer). 
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